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sean last won the day on July 4 2012

sean had the most liked content!

About sean

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  1. smiley face alert :)

  2. good morning, just sending out random hellos. Hello :)

  3. Sean

  4. Hi all, and 'moo' back (?!) lol

    been gone awhile, hope everyone is doing well!

    Sorry about your Wookie... bent or not Im sure the Borg will accept him ;p

  5. What Are You Thinking?

    Im wondering why companies like Mansanto are hacking the E.Coli virus and using genetic manipulation to create GMOs ("") to better mankind's food supplies, yet we refrain from using similar technology (in vivo) to make corrective manipulations to the dna of individuals in our special needs populace. ...I thought that was why the Human Genome Project kicked off in the first place?? It really frustrates me that in the year 2012, this is the closest we have come to tackling a chromosomal abnormality at it's core (in humans). I won't accept that we don't have the technology or available funding to do something even MORE RADICAL than human flight and space exploration. 13 year old daughter Andramada* is asleep in her room, and will remain asleep only due to the medication she has been given. My child, (nicknamed "Drama" at an early age suffers from a rare chromosomal abnormality known as Smith Magenis Syndrome, (a microdeletion of the p arm on the 17th chromosome). (She is cognitively at the level of a 2 year old, limited verbal, 40 IQ, and quite accurately fits the steriotype for individuals with this disorder, including physiological (which I believe included the total anomolous pulmunary venous return heart surgery she had at 6 months old, and her (surgically corrected) unilateral cleft lip and palatte) and psychological, including severe self injurious behavior and behavioral problems, an inverted circadian rhythm (which contributes to her lack/non existant (?) REM cycle /short periods of sleep. This disorder is not heredetary (noone in my family or her mother's were 'carriers'). When she was born, when I wasn't with her at the hospital, I was in optimistic contact with geneticists, inquiring to implementing genetic therapies... and as the years went by, as the skins of tomatoes were modified to endure shipping, my daughter's realization of a 'cure' has not come into fruition, and my optimism has turned into burnout. In many ways, she reminds me of Claudia, the character in an Anne Rice novel, a child who will never grow up. Sure, it isn't fair, to her, to the kids at her special needs school, and to those whom society continues to push under the rug... (btw this is the reason I ADORE the character TIMMY and JIMMY from South Park. IMO they are the voice of the giant middle finger on behalf of every special needs individual whom is unable to say 'fuck you' to every POS who ever preyed upon them with cruelty (including mockery etc) but I believe what is most unfair is the lack of progress in general in actually using our technology to make progress. Progress like cures. I can take her to see the new Disney/Pixar film and not have to worry about her punching herself in the head and throwing popcorn at the people in front of us or throwing her shoes or causing herself to bleed everywhere and or ripping off her diaper and getting feces and uring all over the movie theater/car etc... instead of waiting for the movie to come out on DVD... or IDK, have a conversation with her that was more in depth than 'are you hungry?' 'wash your hands', 'please stop hurting yourself'... *sigh* maybe if I dressed her like a tomato I could get some fucking results. What does amaze me is that there are people out there, people like Eliza Newman (who used to be my daughter's classroom aid) and Servitor Sean, whom have dedicated themselves to helping out the special needs community. They don't receive recognition for it, and the 'thank you's' are few and far between. If anyone has bothered reading this, especially anyone whom is considering what career to follow, Id like to strongly suggest exploring the field of genetics. This world needs ambitious individuals to take on this monolithic task of making genetic disorders a thing of the past. *I misspelled her name when she was born from the original 'Andromeda', in hopes that the general populace of culture lackers would have an easier time pronouncing it... which proved to be a waste of thought on my part (commonly pronounced "ahn drah mah dah", like the Ramada Hotel...)(followed by 'where did you get that name from?' ...if I had a nickle for every time I heard that... *sigh* however, she does have, IMO, a pretty cool/urban nickname: Drama (or Drama Mamma) ...ironically, I was unaware of the mythology associated with her name (aside from understanding her name originated from said mythology)... 'a maiden chained'... and while the million acre fire of optimism I once had for her to be set free has withered to embers, it still burns, and seeks the tankers of rocket fuel that only scientific research will yield.
  6. I bent my Wookie.

  7. Thats funny cause I found you on Facebook before here! Lol! :D

    Good meeting you, and Im back in my snowey wonderland. :)

  8. Fun handing out with you last night, and props for coming all the way from Windsor!!! Happy NYE and we hope you made it home safe =D

  9. Hi! Sorry for the late reply (happy thanksgiving to you, too!) (REALLY late, lol)

    Hope your having a good day; stay warm out there =D

  10. nothing is everything, and everything is nothing

  11. The past 2 nights I saw you were just crazy! ...Ill have to bring you over to the new place =D


  13. Song that describes your mood right now

    the entire Ardor album by Love Spirals Downward perfectly describes my mood right now.